Everything is fine. I recently had a surprising morning, and a chance to practice my emergency preparedness. I want to share what happened and what I did in case it is useful to someone else. I have a special interest
Unexpected Evacuation Drill
An Anniversary: 5 Years of SSDI
But today’s a date that means something to me: my five year anniversary of being approved for SSDI.
I never hear people talk about that kind of date. But it’s the day my world changed.
It’s Tuesday Morning
I was about to write a Facebook post, Facebook being the place I most often share the challenges of navigating benefits systems as someone who is disabled with severe chronic illness. And it occurred to me that perhaps I should
Books by Mail
Trust Us To Be Reliable Narrators
I so often love Brianne’s comments, questions, perspectives. And this one is particularly important. When my people *understand* what’s going on with me, that’s great! I feel seen, cared for, appreciative that they’ve taken the time to learn. But do
The Post Office: Power, Responsibility and Access
I’ve seen two flavors of memes going around lately, and they are both problematic. One directs folks to buy stamps in order to generate income for the post office. The other directs people to do things to vote that don’t depend
Bed-tethered Lifehacks: May 2020 Update
I love seeing how other people organize things and solve problems. Those what’s in your bag posts? Love them. For bedbound folks, the question is usually, what’s next to your bed? We want to know how folks set up their
Favorite Reads of 2019
I set an ambitious book goal for the year. I did not come even close to achieving it. The most important thing to know about my reading experience, is that it based on a game I like to call “library