Rebecca Weger

Movie Adventure
I went to the movies for the first time in about 16 months! My friend and I met up at @thecinemapolis to see Downton Abbey. Fun, fluffy, entertainment. Last year I was lying in bed one day fantasizing about going out in the world on a bed carried by my friends. I had a revelation that the right wheelchair might work kind of […]
Communicating About Chronic Illness
I am a member of quite a number of Facebook support groups for my illnesses, particularly ME and POTS. One of the biggest themes I hear from others is a struggle to be heard, understood, believed. I don’t often have that problem, and I think there are a number of reasons for that. One is communication tactics and skills. […]
Staying Connected to the Outside World
Until I was too ill to go out much, I walked through my neighborhood every day. I walked to work from 2008-2016. I got a dog in 2014. I have a deep connection to this little part of the world. I met neighbors, made friends, and spent heaps of time at one of my favorite waterfalls; where I live, they’re part of the urban […]
Wheelchair Investigations
New wheels! I’m so excited to have gotten my first wheelchair! It took a lot of research, and I’m having a really mixed experience with it. Delight! Hope! Frustration! Sometime in the fall, I started having periodic fantasies of going places being carried on a bed by my friends. I imagined going to events, having a […]
Bed-tethered Life Hacks: Bedside Supplies
I spend about 90-95% of my time in bed. I’m able to get up to use the bathroom, grab something from the kitchen, get a book from the living room, but I don’t move around much more than that. And my goal is to do everything I can to minimize how much I move. That’s because my energy production and recovery […]
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve. I could worsen. There’s no way to predict. It’s not […]
Disability and Assistive Devices
We are not shown many examples of disability in the media, and the ones that we are shown are often portrayed as tragic, or in the realm of inspiration porn. People seem to have an idea of disability as being black or white or in extremes. Like, someone is totally blind or totally deaf or their legs don’t move. But […]