Rebecca Weger

Staying Connected to the Outside World
Until I was too ill to go out much, I walked through my neighborhood every day. I walked to work from 2008-2016. I got a dog in 2014. I have a deep connection to this little part of the world. I met neighbors, made friends, and spent heaps of time at one of my favorite waterfalls; where I live, they’re part of the urban […]
Wheelchair Investigations
New wheels! I’m so excited to have gotten my first wheelchair! It took a lot of research, and I’m having a really mixed experience with it. Delight! Hope! Frustration! Sometime in the fall, I started having periodic fantasies of going places being carried on a bed by my friends. I imagined going to events, having a […]
Bed-tethered Life Hacks: Bedside Supplies
I spend about 90-95% of my time in bed. I’m able to get up to use the bathroom, grab something from the kitchen, get a book from the living room, but I don’t move around much more than that. And my goal is to do everything I can to minimize how much I move. That’s because my energy production and recovery […]
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve. I could worsen. There’s no way to predict. It’s not […]
Disability and Assistive Devices
We are not shown many examples of disability in the media, and the ones that we are shown are often portrayed as tragic, or in the realm of inspiration porn. People seem to have an idea of disability as being black or white or in extremes. Like, someone is totally blind or totally deaf or their legs don’t move. But […]
Signal Boost: What to Do When You’re Bored With Your Routines
Blame hedonic adaptation: the tendency for us to get used to things over time. Source: What to Do When You’re Bored With Your Routines One of the things that gnaws at me a little is how much my life has drifted into routine as my illness has become more severe and I spend more time at home. I’ve never liked most routines. […]
Reading List: A Woman is No Man by Etaf Rum
Wow. I just finished this novel, and it was intense. It hurts to read. It hurts to imagine. And it hurts in moments where it is relatable, despite my culture and privilege differences from the characters. Etaf tells a story of women’s obligation and pain through the lens of culture, specifically a Palestinian lens. A […]