The time, energy, organization and tasks around living life with complex medical conditions can be overwhelming and draining. Here are some things that have helped me.

Daily Log: Symptoms, Activities, Interventions

I meticulously record a lot of information about my health and treatment on a daily basis. It helps me understand trends over time, and accurately report changes to my doctor. I keep track of activity, symptoms, medications, foods, heart rate, pain, rest, and other details. This is work, and requires some ongoing commitment to be useful. It’s also one of the very best things I’ve ever done to manage my health.

Organizing Medical Appointments

Some basics on the mechanics I use for preparing for, participating in, and following up with medical appointments. This link takes you to a page I authored for the amazing resource How To Get On.