Everything is fine. I recently had a surprising morning, and a chance to practice my emergency preparedness. I want to share what happened and what I did in case it is useful to someone else. I have a special interest
Unexpected Evacuation Drill
An Anniversary: 5 Years of SSDI
But today’s a date that means something to me: my five year anniversary of being approved for SSDI.
I never hear people talk about that kind of date. But it’s the day my world changed.
It’s Tuesday Morning
I was about to write a Facebook post, Facebook being the place I most often share the challenges of navigating benefits systems as someone who is disabled with severe chronic illness. And it occurred to me that perhaps I should
Books by Mail
There is More Right With You Than Wrong
“As long as you are breathing there is more right with you than wrong with you, no matter what is wrong.” – Jon Kabat-Zinn It was almost six years ago that I finally made my way through reading Full Catastrophe
30 Years
People seem curious why I’m not more angry about the illnesses that ravage my body, erode my sense of trust and safety in myself, limit what I can do in the world. I don’t know the full answer. But I
Trust Us To Be Reliable Narrators
I so often love Brianne’s comments, questions, perspectives. And this one is particularly important. When my people *understand* what’s going on with me, that’s great! I feel seen, cared for, appreciative that they’ve taken the time to learn. But do
Bed-tethered Lifehacks: May 2020 Update
I love seeing how other people organize things and solve problems. Those what’s in your bag posts? Love them. For bedbound folks, the question is usually, what’s next to your bed? We want to know how folks set up their