I so often love Brianne’s comments, questions, perspectives. And this one is particularly important. When my people *understand* what’s going on with me, that’s great! I feel seen, cared for, appreciative that they’ve taken the time to learn. But do
Practice, Not Perfect
Meditation is saving my brain and my heart. I don’t remember when I first learned to meditate. I remember being required to sit every day for a period of three months back in about 2004. So it was before that.
The Post Office: Power, Responsibility and Access
I’ve seen two flavors of memes going around lately, and they are both problematic. One directs folks to buy stamps in order to generate income for the post office. The other directs people to do things to vote that don’t depend
Some Coping Approaches for COVID-19
I know folks are feeling scared and overwhelmed with the prospect of social distancing, isolation, possibly even quarantine. Here’s a missive from someone who has experience being housebound. I’ve been mostly housebound since sometime in 2017. As of this writing,
Communicating About Chronic Illness
I am a member of quite a number of Facebook support groups for my illnesses, particularly ME and POTS. One of the biggest themes I hear from others is a struggle to be heard, understood, believed. I don’t often have
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve.
Signal Boost: What to Say If Your Friend Isn’t Going to ‘Get Well Soon’
Not everyone with a chronic or lifelong illness is going to ‘get well soon.’ One woman explains what to say and how to be there for someone living with a chronic illness that might not get better. Source: What to
Supporting Each Other: Part 3
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,