ME Disability Scale

The Hummingbirds’ Foundation for ME 3 Part M.E. Ability and Severity Scale

Two-Day Cardio Pulmonary Exercise Testing

Until a true biomarker is identified, a 2 day CPET is the best way to “prove” ME by measuring anaerobic threshold and post-exertional malaise (PEM). This test is only offered in three US locations that I’m aware of, in NC, CA and NY (Ithaca). The test should be considered carefully, as it can cause significant crashes or setbacks. Health Rising article. It has been useful in applications for SSDI.  Here’s a great article on the work that Besty Keller is doing with this at Ithaca College: Tireless Work on Chronic Fatigue Syndrome.

Pain scales are tricky for folks with chronic pain to navigate. I like the one at the bottom of this article, which can bee seen on its own here. There’s a printable version in here.