I live with several chronic illnesses that have a significant impact on my health. The most debilitating are Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome (ME/CFS) and Postural Orthostatic Tachycardia Syndrome (POTS). I’ve had these conditions since my late 20s, and they have gotten progressively worse over time. I have been primarily housebound since early 2018.

There are tons of tools, blogs and websites out there with useful information on the chronic illnesses I live with. I’ve compiled a list of some of the ones I refer to most often, or have found especially useful.

Myalgic Encephalomyelitis


Postural Orthostatic Tachycardia Syndrome


General Chronic Illness Resources

How to Get On

Lily Silver’s site is an *incredible* compilation of resources for self-advocacy and benefits. It contains lots of testimonials of personal approaches and experiences.

Want to know how I organize medical information and handle appointments? Check out my overview over at How to Get On.

Several of us compiled tips on How to Go to the Doctor Without Crashing.