I spend about 90-95% of my time in bed. I’m able to get up to use the bathroom, grab something from the kitchen, get a book from the living room, but I don’t move around much more than that. And
Bed-tethered Life Hacks: Bedside Supplies
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve.
Disability and Assistive Devices
We are not shown many examples of disability in the media, and the ones that we are shown are often portrayed as tragic, or in the realm of inspiration porn. People seem to have an idea of disability as being
Supporting Each Other: Part 3
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,
Supporting Each Other: Part 2
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,
Supporting Each Other: Part 1
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,
Self-Care: A Working Definition
I think a lot about self-care. There’s the inescapable advertising and blogging about products and spa days and yoga and having a glass of wine brought to us by the wheels of capitalism. The superficial listicles. And the very real,
Unrest
Almost two years ago I sat huddled in a corner of The Engineer’s Club in Baltimore. My companion and I were catching up and she asked how I was doing. I took a deep breath and I told her. Not