Until I was too ill to go out much, I walked through my neighborhood every day. I walked to work from 2008-2016. I got a dog in 2014. I have a deep connection to this little part of the world.
Staying Connected to the Outside World
Wheelchair Investigations
New wheels! I’m so excited to have gotten my first wheelchair! It took a lot of research, and I’m having a really mixed experience with it. Delight! Hope! Frustration! Sometime in the fall, I started having periodic fantasies of going
Bed-tethered Life Hacks: Bedside Supplies
I spend about 90-95% of my time in bed. I’m able to get up to use the bathroom, grab something from the kitchen, get a book from the living room, but I don’t move around much more than that. And
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve.
Disability and Assistive Devices
We are not shown many examples of disability in the media, and the ones that we are shown are often portrayed as tragic, or in the realm of inspiration porn. People seem to have an idea of disability as being
Supporting Each Other: Part 3
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,
Supporting Each Other: Part 2
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,
Supporting Each Other: Part 1
I think a lot about how people interact with and support each other, especially around the harder things in life. Many of us did not learn the skills necessary to do this well from our families of origin growing up,