I set an ambitious book goal for the year. I did not come even close to achieving it. The most important thing to know about my reading experience, is that it based on a game I like to call “library
Favorite Reads of 2019
Reading List: She Said
I love finding books that stay with me for a very long time. One of the best compliments I can give a book is to say it was horrible. By which I mean, the book revealed and chewed on something
Movie Adventure
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I went to the movies for the first time in about 16 months! My friend and I met up at @thecinemapolis to see Downton Abbey. Fun, fluffy, entertainment. Last year I was lying in bed one day fantasizing about going out in
Communicating About Chronic Illness
I am a member of quite a number of Facebook support groups for my illnesses, particularly ME and POTS. One of the biggest themes I hear from others is a struggle to be heard, understood, believed. I don’t often have
Staying Connected to the Outside World
Until I was too ill to go out much, I walked through my neighborhood every day. I walked to work from 2008-2016. I got a dog in 2014. I have a deep connection to this little part of the world.
Wheelchair Investigations
New wheels! I’m so excited to have gotten my first wheelchair! It took a lot of research, and I’m having a really mixed experience with it. Delight! Hope! Frustration! Sometime in the fall, I started having periodic fantasies of going
Bed-tethered Life Hacks: Bedside Supplies
I spend about 90-95% of my time in bed. I’m able to get up to use the bathroom, grab something from the kitchen, get a book from the living room, but I don’t move around much more than that. And
Quality of Life
Here’s the thing about having a really disabling chronic illness. It’s unpredictable. And very difficult to plan for the future. While I have several conditions, the one with the most dramatic impact on my life is ME/CFS. I could improve.